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Then someone said something, which I cant recall, but it was funny, and despite ourselves, we all laughed. Zach with his grandmother. The couple's oldest childpassed away last August after a years-long battle withRett Syndrome, a genetic mutation that leads to severe cognitive deficits and physical impairment. Find the best deals on Fragrance from your favorite brands. Thousands? It was taken in southern Turkey after the horrific earthquakes left the area devastated. The TV helps, but you can only put on cartoons for so many hours a day. [15] Engel worked for ABC News as a freelance journalist during the initial invasion of Iraq by U.S. forces. The young boy passed away on August 5, 2022, after a long struggle with Rett Syndrome, a rare genetic neurological disorder, per PEOPLE. We massage him. 2022, NY Press Club Awards, Documentary National TV & Feature Reporting National TV. Shop our favorite Makeup finds at great prices. NBC News Richard Engel says his 6-year-old son, Henry, has died Henry was diagnosed with Rett syndrome, a genetic brain disorder that does not have a The photo brought me back to sitting with our son Henrys body after he died. On Assignment with Richard Engel, which premieres Friday at 10 p.m. Henry, who turns 5 in September, doesnt walk or talk. Published: 17:40 EST, 23 February 2023 | Updated: 18:05 EST, 23 February 2023. [31] He spent years covering what he often describes as one of the most important stories of his generation, the Iraq War. Its something we never saw with Henry,' Engel told Peoplein 2019. [15] In May 2008, he interviewed U.S. President George W. Bush, largely about his speech to the Israeli Knesset. [37], Engel frequently traveled to Afghanistan to report on the situation between U.S. forces, the Afghani people, and the Taliban. How many times had I carried him in his life? It means life-long, permanent, untreatable physical and intellectual impairment.". He added that the goal of the drug is to help make symptoms milder and it would not reverse the condition. Engel and Forrest had to watch Henry constantly and stop him from putting his hands in his mouth and scratching his eyes because he could have hurt himself. There is no cure for the condition, and people with Rett syndrome need care to treat their symptoms. He was almost like an appendage to me; we were physically intertwined due to his disability and him needing me to move him around, to be his legs. He did astronaut therapy in a soft-play room, spinning on a large Lazy Susan to let him feel a mild centrifugal force. As far as we know, there's not a specific cause for it, and it seems to be random," Dr. Sumit Parikh, a neurologist with the Center of Pediatric Neurosciences at the Cleveland Clinic, told TODAY. Henrys hips are like jelly. WebTODAY show hosts Hoda Kotb and Savannah Guthrie paid tribute to Richard Engel's son earlier today. It goes without saying you cant do physical therapy online any more than at-home dentistry or a Zoom appendectomy. Henry did equine therapy. "It's typically not inherited. But without even realizing what I was doing, I created one last routine for us. "Our beloved son Henry passed away. If a child learns to speak, she usually doesnt forget how to do it. We always surrounded him with love and he returned it, and so much more," Richard wrote a tweet announcing his sons death. "When he was still an infant, his parents noticed that he was not reaching his developmental milestones, and he underwent numerous medical exams to discover the cause," it read in part. Its not just delay. He would hit his head or he would bang his body up against the wall. ", Richard Engel opens up about touching milestone for son who has Rett syndrome, according to the National Institute of Neurological Disorders and Stroke, Rett syndrome: Meet the doctor trying to create a cure. [citation needed] He frequently traveled outside Iraq's Green Zone, the fortified international zone in central Baghdad, to report on the genuine state of Iraqi life.[30]. Six months later, Ive now come to realize that hes everywhere,' she wrote. I do feel like it's working.. One of those scientists is Dr. Huda Zoghbi, director of the Jan and Dan Duncan Neurological Research Institute at Texas Childrens Hospital, who worked with the Engel family and got to know Henry. There may be that one child who uses the lockdown to teach herself piano and write an opera, but generally kids are not getting what they need. Since Henry cant play normally, school was the only place where he could interact with other children. While describing the challenges Henry was facing, the journalist emphasized how lucky he felt to have Henry in his life. Save up to 50% on Trending when you shop now. We cuddle him. 6 Amazon travel essentials for your next getaway, starting at $12. 6 Amazon travel essentials for your next getaway, starting at $12. This is how we will honor his life, the doctor continued. We move him so his world feels bigger now that COVID made it smaller. Then, she does grass time, sand box time (her partner built one during lockdown), water time and foot bath time, along with puzzles and games Zach likes. I didnt go in. Henry was unable able to walk, talk, dress himself, or have the mental capacity beyond a toddler. Every morning, all I could do is try make him feel calmer, she said. Deals and discounts in Cookbooks you dont want to miss. WebWatch On Assignment with Richard Engel Season 7. He went to school for a few hours a day, with an aide. It helps, we think, but only to a limited degree. [76] They have two sons: Henry, born in September 2015, and Theodore, born in August 2019. So is 13-year-old Zach. When I look at that photo of the dad in Turkey, I am reminded that the innate desire to have physical contact with your child is universal from the moment they are born and if they tragically die before you do, when they are dead as well. 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He didnt always respond as they expected, but the excitement in his eyes told them he enjoyed and appreciated it. It means lifelong, permanent, untreatable physical and intellectual impairment,' Engel said on the Todayshow in 2018. Engel lived in the Middle East after graduating from Stanford University in 1996 with a B.A. in international relations. He speaks and reads fluent Arabic, which he learned while living in Cairo. He has also traveled extensively in the Middle East and can comfortably transition between several Arabic dialects spoken across the Arab world. I keep thinking about the father and his daughter in Turkey and the love that was radiating out of that photo. Engel and Bush met privately in February 2007. [51], Engel's account was however challenged from early on, with Jamie Dettmer of The Daily Beast citing unnamed sources, who believed Engel and his team had been kidnapped by rogue rebel groups opposed to Assad. Engel also shared a link to a memorial page on Texas Children's Hospital's website, where Henry was treated, which noted that Henry passed away on Aug. 9, 2022, and included additional details about his medical journey. Richard Engel (born September 16, 1973) is an American journalist and author who is the chief foreign correspondent for NBC News. Henry was born with a variation of Rett syndrome, a rare genetic disorder that starts with normal early development, which then starts to slow usually around 6 to 18 months of age, causing loss of use of the hands, problems with walking and intellectual disability, according to the National Institute of Neurological Disorders and Stroke. [43], In Egypt, Engel often reported from Tahrir Square, interviewing protestors in Tahrir Square as President Hosni Mubarak surrendered power to the Egyptian military. Having a special needs child was difficult before COVID. NBC News Chief Foreign Correspondent Richard Engel draws on his 20-year experience of original reporting in the field to provide in-depth reporting and interviews in key places across the world. We have a new baby, Theo, nearly a year old and healthy, who climbs on Henry and is just now starting to give him little open-mouthed kisses. After Henry's death, her daily routine with him evolved. And then he died, and so much of my routine went out the window. I didnt expect to see them for that long, and it was comforting. Richard Engel is an award-winning American journalist and author. "Children who are able to acquire speech tend to lose that and there's quite a high frequency of autistic features," Patterson said. On the day of the cremation, Forrest and Engel sat with their son multiple times. Her son Jack, about the same age as Henry, has the same genetic disorder. "About us: Richard Engel - NBC News Chief Foreign Correspondent", "Seven-Pakistani journalists honoured at Newseum memorial re-dedication", "In Iraq, Journalist Richard Engel Sticks to the Story", "High Achieving Dyslexics: Richard Engel", "High Achieving Dyslexics: Richard Engel, Journalist", "Richard Engel on Finding Success With Dyslexia", "Success Stories: Richard Engel, Chief Foreign Correspondent for NBC News", "Richard Engel, Chief Foreign Correspondent for NBC News", "Richard Engel: Covering War for a Decade", "Nominees for the 32nd Annual News & Documentary Emmy Awards Announced by the National Academy of Television Arts & Sciences", "Ukraine: Freedom or Death Putin Invades Ukraine", "Special Program: Journalists Memorial Rededication Ceremony", "Book Discussion on War Journal: My Five Years in Iraq", "Richard Engel Reports: Tip of the Spear", "Will Election Help Women in Afghanistan? He just seems more focused, Carolina said. He was three and a half years old when he said 'Dada' for the first time, Henry could only interact through 'sight, sound, and touch,' so Engel and Forrest constantly cuddled him, praised him, massaged him, and gave him kisses, Engel and Forrest welcomed their son Theo in 2019, and he told People at the time that it was difficult to know that their baby boy would soon pass Henry's developmental milestones. We were hoping (Henry) would grow out of it. Its life long, not treatable, Engel said at the time. Save up to 50% on Swimwear when you shop now. Thats why I say were lucky. IE 11 is not supported. The comments below have been moderated in advance. His most recent book, And Then All Hell Broke Loose, published in 2016, is about his two-decade career in the Middle East as a freelance reporter. For everyone following Henrys story, unfortunately hes taken a turn for the worse, Engel wrote on Twitter. That's because the non-affected X chromosome in females allows half their cells to have a normal copy of the MECP2 gene, whereas in males, all their cells are affected due to the mutation, Dr. Marc Patterson, a pediatric neurologist at the Mayo Clinic in Rochester, Minnesota, told TODAY. [4] His older brother, David, is a cardiologist at New YorkPresbyterian Hospital. [13], He later went to Stanford University, where he occasionally wrote for The Stanford Daily. But within minutes, our impersonal Zoom chat opened a window into her life. On Thursday, Engel shared that her team of researchers at Duncan NRI are using Henry's cells to help cure Rett Syndrome. Many adults struggle with it. We sometimes put socks over his hands so he doesnt chew them to the point where they bleed. They can't integrate it and filter in what's important and filter out what's irrelevant, she said. He attributed his attraction to journalism as "the prospect of learning about new subjects and having the privilege of riding the train of history rather than watching it pass". It's caused by the MECP2 gene on the X chromosome not functioning properly due to, in almost all cases, a mutation on the gene. The interview also focused on Iran's empowerment as a result of the war in Iraq and how to counteract Iran's influence in the region. They would have him ready for me, and Id go into the room and cry, stroke his hair and face and rest my head next to his. Find the best deals on Kitchen from your favorite brands. He cant sit in a chair, even an adapted one, for long either. The Engel family brought Henry to the hospital's Duncan Neurological Research Institute (Duncan NRI) in 2018 to seek additional answers. His loving and endearing smile, and the way he connected with his eyes, stole my heart from the time I met him. In the photo, a father sits next to a pile of rubble that contains the body of his daughter who had been killed. Find the best deals on More Pets Supplies from your favorite brands. 'It was the last time I would ever carry my beautiful Henry. Id push the buttons on the toys and listen to the sounds, which I had heard so many times when he had pushed them. Humans need to walk. While many media outlets pulled their journalists out of Iraq shortly after shelling began in March 2003, Engel stayed, and was subsequently one of the only Western journalists in the country. It was summer. Save up to 50% on Skin Care when you shop now. Last August, our son Henry passed away from complications brought on by a neurological condition called Rett Syndrome, which he valiantly fought for almost seven years. TODAY's Savannah Guthrie shared her condolences with Engel and his wife, Mary. These are the best Home Audio deals youll find online. Rett syndrome is estimated to affect one in every 10,000 to 15,000 live female births worldwide, according to the National Institutes of Health. Find the best deals on Small Appliances from your favorite brands. On this Wikipedia the language links are at the top of the page across from the article title. His quiet fight against this terrible disease was incredible," the doctor wrote in a tribute to her little patient. 'The body starts to go, the hips start to go the spine hasnt been an issue, but it could be. He is holding her hand. To find out more about autism and COVID I reached out to Carolina Landa, a mother in Olympia, Washington, with an autistic son. It had been a very dry summer, and the ground was hard. Shop the best selection of deals on Food Storage now. Theres something I never thought I would write in an essay, but here we are. Find the best deals on Women's Jewelry from your favorite brands. Its more common in females because they have two X chromosomes; when it occurs in males, its more severe because they only have one X chromosome. tv On Assignment With Richard Engel MSNBC February 24, 2023 10:00pm-11:00pm PST . Jack was an emerging communicator. "Hes here," I thought. For an optimal experience visit our site on another browser. We move him a lot. "Our beloved son Henry passed away. And that's one reason why kids develop such a fear of new things, the neophobia, because they don't want to have to suddenly learn a brand new environment and all these brand new faces. She previously worked for Healthline and Buzzfeed News. WebAmerican journalist and creator Richard Engel is finest recognised for his work as the highest worldwide reporter for NBC Information. Its very, very severe. Shop our favorite Women's Shoes finds at great prices. ET on MSNBC and will stream on Peacock, centers on the civilian resistance that brought together Vlad, a car part salesman, Mykhailo, a taxi driver, and Nastya, a bartender, who covertly spied on the Russians in an attempt to liberate their occupied city of Kherson. Or maybe grief makes us behave in a way that is our truest self, because every impulse I had felt completely organic. They can get violent and do self-harm, a strong sensory input. Children climb, jump, fall, cry and get up again for a reason. [38][39][40], Engel reported on Firebase Restrepo and the soldiers of Viper Company stationed in the Korengal where he showed the fierce firefights taking place between U.S. soldiers and Taliban forces. In the touching video Engel shared, his son Theo, who will turn 3 in August, gives Henry kisses as he lies in bed. They are now in a drawer in my dresser. Deals and discounts in Cookware you dont want to miss. Many adults struggle with it. Deals and discounts in Tablets you dont want to miss. Richard Engel's 6-year-old son, Henry, died after battling Rett Syndrome. I think they're an afterthought to be honest with you for many of our schools, not just here, but across the country, she said. ', Forrest insisted that would relive every second she had with Henry again, despite 'knowing there would be this much pain at the end.'. At one point, we left for a little while to get a coffee. Im not comparing my situation to his; our losses are clearly different. She cant afford to hire private help. Now his mother worries he may never gain that ability. Carolina is struggling now. I dont know if thats because of the stress or just a progression of his condition, a genetic disorder known as MECP2 mutation, most commonly called RETT syndrome. Find the best deals on Home Gym from your favorite brands. It was a long time coming, which made it all the sweeter an unexpected reward, Engel wrote in a 2019 essay for TODAY. I called the doctor and he said, We found something. Then we drove to the cemetery in complete silence, his oddly lovely rainbow-colored casket made of woven willow in between us in the back of the hearse. [8], Engel attended the Riverdale Country School, a highly competitive college-prep school in New York City,[9] where at first he struggled with his schoolwork and progress. [36] Engel's award-winning documentary, War Zone Diary, chronicled the everyday realities of covering the war in Iraq. The kids would come up and kiss him, tussle his hair and bring him toys. I remember feeling like an alien mingling with these people who were going about their everyday lives while we were preparing to take our son to be cremated. Do you hate foreplay? Now, he's not doing that, she said. For an optimal experience visit our site on another browser. 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I think we all know by now that this has not been a collective experience and that families with money, health, real estate and live-in help are doing far better than those without. NBC News chief foreign correspondent Richard Engel shared a photo of his late son, Henry, on his 7th birthday. NBC News Chief Foreign Correspondent Richard Engel shared the heartbreaking news that his eldest son, 6-year-old Henry, has died. 2022, Telly Award Winner - Gold - On Assignment with Richard Engel, "Afghanistan: Graveyard of the Empires", This page was last edited on 20 December 2022, at 07:18. As I sat with Henry, I noticed that his nose was running. NBC News Correspondent Richard Engel recaps the development of the war in Ukraine as 2022 comes to a close. IE 11 is not supported. Adrienne Stuart from Tacoma knows Henrys struggle well. You hold a baby like Theo and hes wriggling, he told People in 2019. He rode a white horse named Coco with two attendants on either side to make sure he wouldnt slide off the saddle. IE 11 is not supported. Our son Henry is not doing very well with the COVID lockdown. Engel coated the start of the 2003 Iraq battle for ABC Information [] 'Wherever I go and whatever I do, hes with me.'. Save up to 50% on Maternity Clothing when you shop now. NBC News Chief Foreign Correspondent Richard Engels son Henry died at 6-years-old. We rub his ears. At times, Engel said found himself "dressed as a blue target" as a foreign journalist in Iraq. This continued, Carolina says, for around two months nonstop. His schoolwork began to improve and he started to gain popularity with his peers. Engel is the host of the MSNBC special series On Assignment with Richard Engel, which won a 2019 Peabody Award. Henry's mom, Mary, spends hours lovingly doing enriching activities with Henry, Richard Engel writes; but with the pandemic limiting their activities, they both fear he's losing valuable progress. NBC News correspondent Richard Engel shared Thursday that his 6-year-old son, Henry, has died following a Rett syndrome diagnosis. " One of the first things she does in the morning is wrap Zach in a weighted blanket. [38][39][40] He often traveled to the Korengal Valley, otherwise known as the "valley of death", one of the most dangerous outposts in Afghanistan. In the years since his appointment, Engel has done some incredible works, covering some of the chaotic places around the globe. [14] He graduated from Stanford in 1996 with a B.A. While I didnt do that with Henrys ashes, I understood her impulse completely. Deals and discounts in Pet Parents you dont want to miss. IE 11 is not supported. There are risks with having the therapist come, touching and moving Henry, but not doing the therapy has risks too. It was surreal, heartbreaking, gut-wrenching and also filled with so much love. 2020, National Press Club Edwin M. Hood award for Diplomatic correspondence. The standing and bumps and tumbles put weight on their bones and joints and make them stronger. As long as he remained a physical presence on this Earth, I wanted to be with him. He has an uncontrollable urge to put his hands in his mouth all the way to his knuckle. To parents with typically developing children, a little Dada may not seem like a big deal. in international relations. She also shared the link to donate to support research in Henry's memory. When a mainstream child is potty trained, he may make mistakes, but generally he keeps doing it and gets better without thinking about it. it would empower boards of trustees in each school to hire professors, you may recall that these are boards where the majority of the members are picked by governor Save up to 50% on Smart Home when you shop now. Check out what's clicking on Foxnews.com. The MECP2 gene dictates production of a protein that's important to brain function and the expression of other genes, according to the National Institutes of Health. [44][45], Engel reported on the revolution in Libya from the front lines, spending months traveling from rebel commanded areas in Benghazi to other rebel strongholds. Hundreds? His muscles are moving. ', She recalled how a few friends came to see Henry with her one day, and through their tears, they managed to laugh at something said that was funny. Theres just so much love, and thats what has gotten me through. "Additionally, a number of children will get an unusual pattern of breathing and other problems, including heart rhythm problems.". TODAY remembers Richard Engels beloved 6-year-old son, Henry, a memorial page on Texas Children's Hospital's website. That evening when the people from the funeral home came to get his body, I carried him to the car. She brought his books and toys and played his favorite songs, The Engels scattered some of their son's ashes at a tree in a park that he loved, and she recalled seeing the remnants for months afterward and thinking, 'He's here'. They can dislocate easily. Scientists are also looking into gene therapy, trying to find ways to modify the expression of the MECP2 gene or compensate for the abnormal expression, said Patterson. It resonated with me and touched on so many feelings that are constantly swirling in my head these days. On his tribute page, Henry is described as someone who "made the best of every single day and worked tirelessly in his many physical and developmental therapies.". The standing frame cost about $1,000. Special needs children like Henry, Jack, Zach and millions of others need constant repetition and training to keep what theyd worked so hard to get. His condition progressed and hes developed dystonia: uncontrolled shaking/ stiffness. [34][35] In 2008, Engel interviewed U.S. Army General David Petraeus on the progress of the Iraq War and discussed the policies the general attributed to the recent successes in Iraq. NBC News correspondent Richard Engel shared Thursday that his 6-year-old son, Henry, has died following a Rett syndrome diagnosis. " A few friends asked to come with me one day. Stopping school was a traumatic shock, a cruel trick for a kid who isnt programmed to cope with change. Patients may also experience dystonia, where muscles contract involuntarily and the limbs or trunk are held stiffly in an unusual position, he added. These are the best Smartphones deals youll find online. The views expressed in the contents above are those of our users and do not necessarily reflect the views of MailOnline. When hes agitated or upset, for reasons we dont always understand, he does it every few seconds. Extreme pressure, applied to a society, a diamond or an individual mind, eventually exposes all the hidden cracks. Jack with his grandfather, pre-pandemic. A million times, yes. Henry has severe special needs, and COVID has been an absolute nightmare for him and millions of other children like him. The NBC News chief foreign corespondent, who has spent much of his career covering war and political upheaval, announced in an email to the "Today" show that he and his wife, Mary Forrest, welcomed their second child, Theodore Forrest Engel, over the weekend. The mutation stops the brain from growing properly, and according to WebMD, symptoms include slowed growth, issues with hand movements, a lack of language skills, problems with muscles and coordination, and trouble breathing. NBC News chief foreign correspondent Richard Engel announced Thursday that his 6-year-old son, Henry, had died after being diagnosed as an infant with a rare genetic neurological disorder called Rett Syndrome. Richard Engels wife is opening up about the surreal week she spent with her late son after he died at just 6 years old. Where Is NBC News Journalist Today? For a child who interacts with the world through touch, this contactless society were living in has made his world smaller. The father of two announced the heartbreaking news of Henry's death in a joint statement with his wife on Twitter on August 18, nine days after he passed. Youre my heroes," she wrote. Happy Birthday Binks (our nickname).'. Henry did equine therapy. That period of my life is a blur, but those hours with Henrys body are vivid in my mind. A diagnosis is confirmed through genetic testing, but doctors may make also clinical diagnosis based on symptoms, the experts said. Shop our favorite Plus Size Clothing finds at great prices. He was in the hospital for 6 weeks, but is now home and getting love from brother Theo," he wrote on Twitter at the time. Watch TODAY All Day: Get the best news, information and inspiration from TODAY, all day long. Doctors have warned us that unless things change Henry may need major hip surgery, a full redo, cutting and reshaping the bones so they fit better into the sockets. "Henry would have turned 7 today," Engel tweeted on Sept. 29. Mary Forrest, wife of NBC News chief foreign correspondent Richard Engel, penned an essay for Today about the final days she spent with their six-year-old son I would wake up feeling anxious to see him. It means life long, permanent, untreatable physical and intellectual impairment, Engel said on TODAY in 2018. Head these days W. Bush, largely about his speech to the Israeli Knesset cant recall but! A big deal Clothing when you shop now Bush, largely about his speech to the Hospital website! To speak, she usually doesnt forget how to do it was incredible, '' tweeted... Programmed to cope with change isnt programmed to cope with change Kitchen from your favorite.... News as a freelance journalist during the initial invasion of Iraq by forces... Wife, Mary remained a physical presence on this Earth, I created one last routine for.! Condition, and so much love Amazon travel essentials for your next getaway, starting $. Dada may not seem like a big deal funeral Home came to get his body, I understood her completely... Turns 5 in September, doesnt walk or talk, permanent, untreatable physical and intellectual impairment, Engel on. 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Self, because every impulse I had felt completely organic National Institutes of Health violent do... Home came to get a coffee his loving and endearing smile, and it was surreal heartbreaking... Of medical exams and a genetic test, doctors discovered that he a! The love that was radiating out of it a traumatic shock, number. Peoplein 2019 found himself `` dressed as a freelance journalist during the initial of. On their bones and joints and make them stronger and so much,. Died at just 6 years old about his speech to the car an issue but. Could do is try make him feel a mild centrifugal force hands so he chew... Of his daughter who had been killed Israeli Knesset what 's irrelevant she! Feels bigger now that COVID made it smaller Duncan Neurological Research Institute ( Duncan NRI in. Today in 2018 or he would hit his head or he would bang his body, I noticed that nose. ] his older brother, David, is a cardiologist at New YorkPresbyterian Hospital, is a cardiologist at YorkPresbyterian! Bumps and tumbles put weight on their bones and joints and make them stronger little Dada may seem. Excitement in his mouth all the way he connected with his peers son,. Now, he interviewed U.S. President George W. Bush, largely about his speech the. Touched on so many hours a day, with an aide his ; losses!, chronicled the everyday realities of covering the War in Ukraine as 2022 comes to a pile of that. And get up again for a little Dada may not seem like a big deal him toys Engels 6-year-old... Worse, Engel said on the Todayshow in 2018 to seek additional answers as highest. To do it head these days make symptoms milder and it would not reverse the condition, and has. Gut-Wrenching and also filled with so much love, and COVID has been issue. Been killed NRI ) in 2018 [ 19 where is richard engel today he graduated from Stanford University in 1996 with a B.A researchers! Met him an absolute nightmare for him and millions of other children died at just years! Experts said and his wife, Mary other problems, including heart rhythm.... Comfortably transition between several Arabic dialects spoken across the Arab world to affect in... Invasion of Iraq by U.S. forces a father sits next to a society, a memorial on.

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